The purpose of this blog is to document the extraordinary life of our daughter, Sarah-Hope. Right from the 13-week pregnancy scan, Sarah-Hope was never expected to live. From that day we decided to embrace, celebrate and enjoy every day of her precious life that we were blessed with, even if this was only in the womb. This blog gives an account of her life, our journey and all Sarah-Hope’s life has taught us.
Tuesday, 13 December 2011
Update - 11 days old
Sarah-Hope is a delight... The only tube left is her feeding tube, which is going to be with us for quite a while as her oral feeding ability is constrained by her respiratory function (but lungs do grow!). BUT exciting news is that her doctor says he'd like her to be home by Christmas! Hoping Santa visits Sarah-Hope in a big way cos we didn't plan for this:)
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