At the end of 2019, Sarah-Hope seemed very depleted. After getting sick in December 2019, bloods were taken which revealed she basically had no iron in her body. She had been absent for a good chunk of the 4th term at school, much more than normal.
I had assumed it was her lung capacity making her tired easily - but after consulting with the paediatric pulmonologist it was actually low iron. She was irritable and exhausted which made going to school or therapy difficult. It was hard to come to terms with the fact that her health was becoming more of a barrier to accessing school than her disabilities. Her limited energy was also a barrier to the progress we could make with her mobility and positive socialisation.
Sarah-Hope had an iron transfusion to top up her iron stores before school started. It had been a while since Sarah-Hope had had a procedure like this. She was most concerned about the pain of the needle - and I took this as a beautiful sign of normality after the countless needles and transfusions she has had to endure before in order to survive.
The hospital ward was empty that day so we snuck Libby in - the girls had such fun, I was barely allowed to disturb them. They can truly play anywhere!
We were determined to set her up for success at school as she was looking forward to Grade 2 with Ms Embalo.
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