This wheelchair race was arranged by Sarah-Hope's Grade 2 teacher, Ms Embalo. This was not a once off event with wheelchairs for the school, however, as they have a real history in inclusion. I was interviewed about our experience at Pinelands North Primary School in terms of navigating wheelchair access for the school inclusion blog:
https://pnpsinclusion.blogspot.com/2020/03/becoming-accessible.html
Becoming Accessible
“It’s the unlocked but closed door that she worries
about the most” parent, Leigh Berg, is explaining her daughter’s mental
preparation for moving around the school in a wheelchair. I hadn’t thought
about it before, but when sitting in a wheelchair turning knobbed door handles
is near impossible. An unlocked, but closed door efficiently shuts down her
daughter’s independence and literally stops her in her tracks.
At “School In Action” Day many of us parents encountered
children in wheelchairs, problem-solving everyday moments from how to find a
reachable writing surface whilst in the wheelchair, to how to get out to the
field for lunch. Some of us parents might have received interesting snippets
from our own children about what it was like to spend an hour in a wheelchair.
Adapting to a wheelchair
I was eager to find out what school life was like for
children who used wheelchairs fulltime. Leigh agreed to share her reflections
about her daughter’s experience at PNPS. Her daughter, Sarah-Hope, was born
with a feisty spirit, a bright mind, and a body that requires much
problem-solving whilst living in a world built for humans with working limbs.
Sarah-hope’s arms have not developed, so her well-functioning hands grow from
her shoulders. Her legs and feet have proven amazingly adaptive to take on many
arm/hand functions, but their structure has also made walking on feet a
challenge. Again, with determined adaptability, Sarah-Hope became an adept
knee-walker.
Sarah-Hope joined Red Roots in 2018, when walking on
her knees was her main method of movement, but during that year it became clear
that her legs’ structure required her to use a wheelchair to transition between
her classroom and other school places. Leigh remembers the psychological
journey of coming to accept the wheelchair, as it meant Sarah-Hope would have
to relinquish the independence that knee-walking had offered her, and grieve
the fact that, in yet another way, she was “not like the other children”. It
took a village of support - Red Roots teachers, her facilitator, school OT and
parents - for Sarah-Hope to come to accept the wheelchair. Alongside the
emotional process, there was a practical process to find the actual physical
spaces where she could navigate her wheelchair. With the help of the OT, routes
between the Sarah-Hope’s grade activity spaces were worked out and practice
runs were done to prepare her for Grade 1.
Accessibility at PNPS
The school is a single-story building on flat ground,
which lends itself to wheelchair movement. However, other intentional changes
have been made too. Ann Morton, principal, explains that in 2004 PNPS hired
disability consultants to conduct an “access audit” of the school. The report
highlighted some immediate and relatively easy changes, which the school proceeded
to implement at the time, e.g. making wooden triangles made to fit to either
side of the lip in the doorway entrances for wheelchair access. However, many
of the recommended changes required budget decisions. Ann ensured that the
Access Audit report became a guiding document for the school’s future strategic
plans and budgets, including subsequent renovations and building work. For
example, correct ramps and door handles were installed in the new art room.
Ann smiles warmly as she recalls how the accessibility
auditors, a blind person and a person in a wheelchair, reported their surprise
at how the PNPS children were comfortable to approach them and converse with
them. This embracing attitude amongst the children was not their common
experience when visiting schools. We reflected upon how accessibility is not
only found in the design of buildings but also in the hearts of people.
A couple of years after this accessibility audit, Adam
joined the school. His reliance on a wheelchair inspired changes to sport,
namely boys being included in netball, as well as the introduction of
basketball and table tennis. The school play was written to include a part for
his wheelchair on stage.
Ann reflects on various ways teachers adapted to
include disabled children. Some disabled children, due to weakness or
paralysis, require the use of nappies for toileting. Ann
has stories to tell about compassionate teachers who, with maximum care and
minimum fuss, changed nappies in a way that upheld the child’s dignity.
Teachers have been required to make other adaptations too: wearing microphones
for deaf children; rearranging the classroom seating for the visually impaired
children. I asked Ann if any awareness or sensitivity training had been required
to help the staff embrace children with disability. “When a disability is
visible and obvious, we have found our staff respond with compassion, care and
willingness to adapt; it is the invisible disabilities that remain a challenge
for us all, just as they do in general society.”
Redefining weak and strong
Leigh was telling me about an experiential learning
activity she had run with a youth group to which Sarah-Hope belong. They had
set up running race with a twist: the children had to race on their knees with
their arms tied behind their backs. The abled-bodied children eagerly
participated but quickly found that the activity was both exhausting and
unexpectantly painful. Leigh chuckles as she recalls how Sarah-Hope was
decidedly unimpressed with her friends’ excessive moaning given that they were
walking on a carpeted floor, where-as she regularly finds herself “kneeing”
over stones and tar. The great “aha” moment for the children was that Sarah-Hope
is not weak, in fact she is incredibly strong and determined.
It is easy for us abled-bodied people to judge another
by what they can’t do, rather than understand how much they have already done just
to show up, let alone participate. The wheelchair experience that PNPS arranges
once every 2 to 3 years helps give children some insight into this.
Learning through experience
Thanks to C&E Mobility, who loan wheelchairs to
the school for a 2-week period, each child gets an opportunity to navigate
school in a wheelchair. Ann introduced the activity during an assembly, which
included enthusiastic dramatic performances by the teacher assistants to
provoke the children to be mindful about how they engaged in the wheelchair
experience. Important wheelchair etiquette includes:
- ask a person if you may push them before doing so
- be thoughtful to move bags and belongings out of the way of the
wheelchair
- respect the personal space of the person in the wheelchair.
- bend down to talk at face level
Ann was clear that this exercise was to allow children
to develop empathy for those needing to use wheelchairs, and not an opportunity
for feel what is wild races and wheelies in the quad.
Ann reports that children took the activity seriously,
bringing her reports on which rooms were inaccessible and needed improvements,
e.g. the computer room. The experience inspired children, and teachers alike,
to be proactively removing barriers to participation
Racing Together
At the Foundation Phase Athletics Day this year,
Sarah-Hope’s class teacher, Suzette Embalo, arranged for one of the races to be
a “wheelchair race” in which Sarah-Hope could race against her peers in
wheelchairs. Let me end with the letter that Leigh wrote to Ann following the day:
I just wanted to
thank you for your efforts to include wheelchairs at the FP Athletics Day this
year. When Sarah-Hope and I had night time cuddles on Saturday night, I asked
her what her favourite part of the day was. She hadn't said much until that
point. But her whole face lit up and she said "RUNNING! I love to RUN RUN
RUN and I wish I could do that every weekend". For a child who can't walk
on her feet, to have the thrill of 'running' with her classmates was just
incredible. She did also say it would have been great if all the children had
left their wheelchair brakes on so she could have beaten them all:)
My heart had sunk
in January 2019 when Sarah-Hope told me 'Mom! Mom! I'm going for an Athletics
trial. My honest response was how do we get you OUT of Athletics day, not INTO
it! For the first time in my life, I got to arrive at an event having had
nothing to do with how Sarah-Hope would be included in it. I just stood and
watched her bravely line up and 'run' in her wheelchair to the cheers of the
families present. Having a school space where inclusion can be tried and
tested, can fail and reinvent itself, changes her experience of the world and
gives her confidence to face it (and us too). What an encouragement!
